ACCESS & ACTION

Consulting

Strengthening Patient and Consumer Engagement

For the
Center for Consumer Engagement in Health Innovation, developed and implemented direct consumer education programs and Train-the-Trainer programs to shape consumer engagement in health plan governance in 5 states.

For Health Care For All, directed the largest-ever state training conference for
Massachusetts' Patient and Family Advisory Councils.

Improving Clinical Trials Recruitment, Accrual and Retention


For Leukemia Lymphoma Society, served as course development lead for
Preparing Patients for Cancer Treatment Discussions: The Critical Role of Primary Care Providers in Facilitating Equitable Access to Care and Clinical Trials

For the Association of Clinical Research Professionals, served as course development lead for:
Improving Recruitment, Accrual, and Retention in Clinical Trials, Implementing a Patient-Centered Informed Consent Process, and Trial Feasibility and Selection: Their Impact on Accrual 


For the Patient-Centered Outcomes Research Institute, led efforts to incorporate principles of Patient-Centered Recruitment, Accrual and Retention to the Institute's Methodology Standards.

For the Recruitment Innovation Center (RIC) at Vanderbilt University Medical Center (VUMC),  served as course development lead for Faster Together, Enhancing the Recruitment of Minorities in Clinical Trials massive open online course  


For
Novartis Oncology,

  • conducted research and developed report and recommendations on engagement with patient groups around oncology clinical trials.
  • developed educational content for Talking Clinical Trials: A Toolkit for Oncology Navigators and Social Workers Talk to their Patients About Clinical Trials  Directed educational content for IMPACT Alliance training program on clinical trial navigation.