ACCESS & ACTION
Strengthening Patient and Consumer Engagement
For the Center for Consumer Engagement in Health Innovation, developed and implemented direct consumer education programs and Train-the-Trainer programs to shape consumer engagement in health plan governance in 5 states.
For Health Care For All, directed the largest-ever state training conference for Massachusetts' Patient and Family Advisory Councils.
Improving Clinical Trials Recruitment, Accrual and Retention
For the Patient-Centered Outcomes Research Institute, led efforts to incorporate principles of Patient-Centered Recruitment, Accrual and Retention to the Institute's Methodology Standards.
For the Recruitment Innovation Center (RIC) at Vanderbilt University Medical Center (VUMC), provide consulting services to increase enrollment of minorities, women and older adults in clinical trials
For Novartis Oncology, conducted research and developed report and recommendations on engagement with patient groups around oncology clinical trials. Directed educational content for IMPACT Alliance training program on clinical trial navigation.
For the Betsy Lehman Center for Patient Safety. conducted interviews with national stakeholders and conducted a literature review to better understand how consumers use and access information about patient safety. Wrote report and recommendations for Center's use.
For Health Care For All, led all research efforts for the Behavioral Health Assessment Project, leading focus group implementation and analysis, drafting and implementing statewide consumer experience survey and analyzing results, and writing reports and recommendations.