ACCESS & ACTION

Consulting

Improving Clinical Trials Recruitment, Accrual and Retention

For The Cancer Support Community, served as training development consultant for its Peer Clinical Trials Support Program: Connecting Black or African American cancer patients with experienced clinical trial participants


For Community Bridges to Cancer Clinical Trials at UNC Chapel Hill,  served as lead training consultant for its community-partnered cancer clinical trials initatives with Community Based Organziation and Black Churches


For the Recruitment Innovation Center (RIC) at Vanderbilt University Medical Center (VUMC),  consulted on course development for Faster Together, Enhancing the Recruitment of Minorities in Clinical Trials massive open online course


For The Multi-Regional Clinical Trials Center of Brigham and Womens Hospital and Harvard, served as course development lead for ICH's "General considerations for clinical studies" designed for researchers and regulators (International Council for Harmonisation of Technical Requirements for Registration of Pharmaceuticals for Human Use of European Medicines Agency) 


For The Leukemia Lymphoma Society, served as course development lead for Preparing Patients for Cancer Treatment Discussions: The Critical Role of Primary Care Providers in Facilitating Equitable Access to Care and Clinical Trials

​For the Association of Clinical Research Professionals, served as course development lead for: Improving Recruitment, Accrual, and Retention in Clinical Trials; Implementing a Patient-Centered Informed Consent Process; and Trial Feasibility and Selection: Their Impact on Accrual 


For the Patient-Centered Outcomes Research Institute, as a member of its Clinical Trials Advisory Panel and Chair of its Recruitment, Accrual and Retention Committee,  led efforts to incorporate principles of Patient-Centered Recruitment, Accrual and Retention Committee to the Institute's Methodology Standards.
  

For Novartis Oncology,

  • conducted research and developed report and recommendations on engagement with patient groups around oncology clinical trials
  • developed educational content for Talking Clinical Trials: A Toolkit for Oncology Navigators and Social Workers Talk to their Patients About Clinical Trials ​


Strengthening Patient and Community Engagement in Health Care

For the Center for Consumer Engagement in Health Innovation, developed and implemented direct consumer education programs and Train-the-Trainer programs to shape consumer engagement in health plan governance in 5 states.

For Health Care For All, 

  • provided technical assistance and training to Massachusetts' Patient and Family Advisory Councils, and directed a statewide education conference.​
  • wrote two evaluation reports (2016 and 2017):  The State of Massachusetts Hospitals’ Patient and Family Advisory Councils,  Assessment of Meaningful Engagement and Impact on Patient Care 
  • developed new "Pyramid of Engagement" to systematize statewide organizing and training efforts on health care reform issues.