Strengthening Patient and Consumer Engagement

For the
Center for Consumer Engagement in Health Innovation, developed and implemented direct consumer education programs and Train-the-Trainer programs to shape consumer engagement in health plan governance in 5 states.

For Health Care For All, directed the largest-ever state training conference for
Massachusetts' Patient and Family Advisory Councils.

Improving Clinical Trials Recruitment, Accrual and Retention

For the Patient-Centered Outcomes Research Institute, led efforts to incorporate principles of
Patient-Centered Recruitment, Accrual and Retention to the Institute's Methodology Standards.

For the Recruitment Innovation Center (RIC) at Vanderbilt University Medical Center (VUMC), provide consulting services to increase enrollment of minorities, women and older adults in clinical trials 

  • Developing curricula to strengthen research staff communication with potential trial participants 
  • Developing Train the Trainer curricula and related materials for leaders in minority communities to conduct awareness workshops

Novartis Oncology, conducted research and developed report and recommendations on engagement with patient groups around oncology clinical trials. Directed educational content for IMPACT Alliance training program on clinical trial navigation. 

Qualitative Research

For the
Betsy Lehman Center for Patient Safety. conducted interviews with national stakeholders and conducted a literature review to better understand how consumers use and access information about patient safety.  Wrote report and recommendations for Center's use. 

For Health Care For All, led all research efforts for the
Behavioral Health Assessment Project, leading focus group implementation and analysis, drafting and implementing statewide consumer experience survey and analyzing results, and writing reports and recommendations.